A Quick Update

Hello Everyone!
 Sorry it's taken be so long to post an update, but I finally got some more information today.  I'll start with the good news first.  A couple of weeks ago I had some blood drawn to see if my body had built up any antibodies to anything, the results came back as a zero!  Which is great, this means it makes it a little easier to find a compatible heart, and my body won't reject it as easily.  Now for the bad news, I've been having a lot of stomach problems the past 4 weeks.  I could barely eat anything and I had a constant stomach ache and bloating.  I went into the doctor and they are pretty sure I have Celiac disease (which means I can't eat wheat).  The only way to know for sure is to do a biopsy through and EGD.  So sometime in the near future I'll have to have another EGD done.  It was also discovered that I was having a reaction to one of the new medications I was put on.  In the mean time, I've stopped taking the medicine and I'm eating a wheat free diet, my stomach is slowly but surely starting to feel better.

I received a call from the transplant director at PCMC yesterday.  She told me that the transplant team has met several times to discuss my case and due to the complexity of my heart defect she wants me to get a surgical consult at IMC.  Apparently my case is very complex and I have several comorbidities due to my liver disease, and I have a complex anatomy (some of my internal organs are on the wrong side of my body).  After considering all of these factors it was decided that I should seek a second opinion with the transplant team at IMC.  I have an appointment in December to discuss my case with the surgeon over there.  I'll keep you guys posted.  But please please pray that this meeting goes well.  If IMC cannot do the transplant I will most likely have to seek help out of state.  Thanks so much for listening to me ramble.

'Til next time.

~Heidi~